Saturday, July 27, 2013

Asperger's: To Tell or Not to Tell

After you get an Asperger's diagnosis for your child, you have to decide how and when to tell your child.  After that, you must decide who else to tell.  Of course, telling his teacher is usually a good idea, and most family and close friends should know.  But should you tell everyone else?  Should you tell people who may not be familiar with Asperger's or autism?

We aren't shy about my son's diagnosis.  We moved to a new area, and since he's been wearing the label for a few years, it just doesn't come up in conversation like it used to.  This is also a rural area where there are many stereotypes about autism.

Autism here means nonverbal or Rain Man.

Asperger's means brainiac who talks like a little professor.

People don't see the meltdowns and social problems associated with Asperger's, so they don't get it.

My kids were invited to vacation bible school at a new church.  We only knew one family, so no one knew about his diagnosis.  I did put it on his medical form because if there had been an accident or injury, the medical staff needed to know that in order to treat him.  I also made the decision that I would stay for the entire duration of VBS just in case.

My son doesn't like to talk to strangers because it is so uncomfortable for him.  Getting him to stand up in front of a crowd is next to impossible.

On the last night of VBS, the kids had a program for the parents.  Since the leader had no idea about his Asperger's or anxiety, he expected my son to get up there and speak his part.

He did it!

Since he was expected to be typical, he behaved as a typical child.

He started stimming, and I knew he was nervous.

But he did it!

Afterwards, I told the leader what an accomplishment that was, and I was so happy that he got him to stand up there and talk.

This is one time I am glad I didn't tell anyone about his diagnosis.  My son got pushed out of his comfort zone.

And he did it!

Wednesday, February 27, 2013

SPD Awareness Bracelets

SPD Connect is ordering more SPD Awareness bracelets.  You can preorder from them here.

They are orange and made from medical grade silicon, so they are safe for our little sensory seekers to chew on!

I am not affiliated with SPD Connect; I just like these bracelets!  I ordered 4 of them last year, and they have held up great!  My SPD boys love wearing them, and I have one for myself too.

I don't know how long the preorder lasts, so hurry if you want to be sure you'll get one.  I'm pretty sure they sold out the last time I ordered.

Wednesday, February 20, 2013

Chewy Jewelry and Toys for Sensory Seekers

One of my boys is a sensory seeker.  He chews on everything.  In school, he chews on his shirt or his pencil.  At home, he chews on small toys, pennies, and basically anything he can put in his mouth.

Since I can't get him to stop chewing, nor do I want to since that is how he regulates, I wanted to give him safe things to chew on.  I got him food safe tubing to chew on.  It is sturdy enough to chew on, and it is safe to put in his mouth.  This should not be used by little ones who can't tell you when there is a tear.  Do not leave a child unattended with this tubing.  I insect the tubing every time I give it to him to make sure it is still safe.

At school, he can't have tubing to chew on.  He doesn't like to self-regulate at school, so I got him a few things to help his day go a little easier and no one knows that he is seeking sensory input.

I love this necklace because he can wear a different design every day.  The lanyard breaks away easily so he won't get choked.

These are awesome because no one knows they are for his SPD.  They look like regular erasers, but he can chew on them all he wants.

These have knobs on them, so they provide more input than other styles.  My son uses these at home, and they are easy for little ones to hold.